Service user involvement in research can range from the extremes of being the subject, to being the initiator or investigator, of a research study. The activity of the professional researcher can also range from being the person undertaking the re...
'This is an invaluable source of information about differing perspectives in chronic illness for those working in primary or secondary care. It is also recommended for those undertaking pre-qualifying and post-qualifying children's nursing courses. It is an essential read for practitioners at a reasonable price.' Nursing Standard, vol 22, November 2007
Fay Valentine is Director of the Children and Young People's Directorate in the School of Nursing and Midwifery Studies, Cardiff University. She has a long history of working with children and young people with chronic illness. Her specialist interests are leadership, adolescence and chronic illness. She is the Welsh representative on the RCN Children and Young People's Advisory Panel, a member of the all-Wales Senior Children's Nursing Forum and committee member for the Welsh Nursing and Midwifery Council. Lesley Lowes is a Research Fellow/Practitioner at the Research, Health and Social Care Research Centre, School of Nursing and Midwifery Studies, Cardiff University. She is an experienced qualitative researcher, whose research interests include childhood chronic illness (diabetes in particular), theories of loss, grief, adaptation and change, and the involvement of service users in health and social care research. She has an extensive clinical and academic publication portfolio, particularly in the field of paediatric diabetes. In addition to her academic work, she has a 50% clinical remit as a paediatric diabetes specialist nurse with Cardiff and Vale NHS Trust.
1 The Definition and Aetiology of Chronic Illness. Fay Valentine & Suzanne Hazell. 2 Context of Care and Service Delivery. Fay Valentine & Peter Mcnee. 3 Impact upon the Child and Family. Lesley Lowes. 4 An Holistic Approach to Meeting Physical, Social and Psychological Needs. Julia Tod & Beverly Hodges. 5 Empowering Children, Young People and their Families. Mandy Brimble. 6 Ethical Issues. Peter Mcnee & Maggie Furness. 7 Continuing Care Needs. Melda Price & Sian Thomas. 8 Acute Emergencies. Peter Mcnee & Martina Nathan. 9 Adolescence. Sian Bill & Yvonne Knight. 10 Transitional Care. Sian Bill & Beverly Hodges